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2019 Million Dollar Bike Ride (MDBR) Pilot Grant Program

Grants to USA, Canada, and International
Researchers for Rare Disease Research

Agency Type:

Foundation / Corporation

Funding Source:

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University of Pennsylvania School of Medicine - Orphan Disease Center (ODC)

LOI Date:

09/23/19

Deadline Date:

10/24/19 8:00 PM EST

Description:

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Grants to USA, Canada, and International faculty-level academic researchers and senior scientific researchers at nonprofit institutions for research related to selected diseases. A letter of inquiry is required prior to submission of a full application. The Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.

Allowable expenses are:

  • Salary for PI
  • Salary/stipend and related benefits for graduate student/postdoctoral fellow/technical support
  • Travel (up to $1,500)
  • Laboratory supplies and other research expenses
  • IDCs of 10% are included in the total award amount

Research Areas for the 2019 MDBR Grant Program:

  • Adult Polyglucosan Body Disease (APBD)
  • Ataxia-Telangiectasia (A-T)
  • BPAN- A Neurodegeneration with Brain Iron Accumulation Disorder
  • CADASIL: Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy 
  • Castleman Disease
  • CDKL5 Deficiency Disorder
  • Charcot Marie Tooth (CMT)
  • Cystic Fibrosis
  • Choroideremia (CHM)
  • Congenital Hyperinsulinism (CHI)
  • Congenital Muscular Dystrophy (CMD)
  • CRB1 (Retinal Blindness)
  • Dyskeratosis Congenita & Telomere Biology Disorder
  • Fibrous Dysplasia (FD)
  • Fibrodysplasia Ossificans Progressiva (FOP)
  • Generalized Lymphatic Anomaly (GLA; a.k.a. lymphangiomatosis) and Gorham-Stout Disease (GSD)
  • Glucose Transporter Type 1 Defiency Syndrome (Glut 1DS)
  • Inclusion Body Myositis (IBM)
  • Lymphangioleiomyomatosis (LAM)
  • Maple Syrup Urine Disorder (MSUD)
  • Mitochondrial Complex 1 Deficiency (NUBPL)
  • Mucolipidosis Type IV (ML4)
  • Mucopolysaccharidoses (MPS)
  • MPS Gene Spotlight: Mucopolysaccharidosis (MPS)
  • Neuroendocrine Cell Hyperplasia of Infancy (NEHI)
  • Niemann Pick Type C (NPC)
  • Pitt Hopkins Syndrome (PTHS)
  • RASopathies
  • SETBP1 Disorder
  • Snyder-Robinson Syndrome
  • STXBP1 Encephalopathy

GrantWatch ID#:

GrantWatch ID#: 160999

Number of Grants:

36-40

Estimated Size of Grant:

Number of awards and dollar amounts vary per disease based on fundraising totals by each disease team:
APBD: $52,509 (2)
A-T: $56,418
BPAN: $61,245
CADASIL: $81,951
Castleman: $51,358
CDKL5: $55,898
CHI: $72,014
Choroideremia: $61,079
CF: $54,718
CMD: $91,176 (1) or $45,588 (2)
CMT: $60,330
CRB1: $40,177
DC: $62,664
FD/MAS: 484,325 (1) or $42,163 (2)
FOP: $40,208 (2)
GLA/GSD: $62,861
Glut 1DS: $46,858
IBM: $102,430
LAM: $72,704
ML4: $78,538
MPS: $64,063
MPS Gene Spotlight: $61,589
MSUD: $44,037 (2)
NEHI: $60,989
NPC: $61,637
NUBPL: $61,134
Pitt Hopkins: $68,709
RASopathies: $59,220
SETBP1: $67,943
Snyder-Robinson: $69,318
STXBP1: $69,588 (2)

Term of Contract:

This is a one year grant. The proposed funding period is February 1, 2020 to January 31, 2021.

Additional Eligibility Criteria:

All individuals holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation are eligible to respond to this RFA.

Unallowable costs:
- Consultation costs
- Tuition
- Professional membership dues-Equipment >$5,000
- General office supplies, institutional administrative charges (e.g. telephone, other electronic communication, IT network, - etc. )
- Pre-award charges
- Any other expenses not directly related to the project

Pre-Application Information:

LOI Due Date: Monday, September 23, 2019, no later than 8:00 PM EST.

Full Application is by invitation only after review of Pre-Application and is due by October 24 at 8:00 PM EST.

Million Dollar Bikeride: http://www.milliondollarbikeride.org/

Contact Information:

Before starting your grant application, please review the funding source's website listed below for updates/changes/addendums/conferences/LOIs.

Submit LOI online: https://orphandiseasecenter.submittable.com/submit/500a8024-bf07-4eea-8711-1f2927418a35/2019-million-dollar-bike-rider-pilot-grant-loi

For any administrative inquiries regarding this grant please email Samantha Charleston at scharle@upenn.edu.

University of Pennsylvania
TRL Suite 1200
125 South 31st Street
Philadelphia PA 19104
grants@ifopa.org

URL for Full Text (RFP):

Geographic Focus:

USA: Alabama;   Alaska;   Arizona;   Arkansas;   California;   Colorado;   Connecticut;   Delaware;   Florida;   Georgia;   Hawaii;   Idaho;   Illinois;   Indiana;   Iowa;   Kansas;   Kentucky;   Louisiana;   Maine;   Maryland;   Massachusetts;   Michigan;   Minnesota;   Mississippi;   Missouri;   Montana;   Nebraska;   Nevada;   New Hampshire;   New Jersey;   New Mexico;   New York City;   New York;   North Carolina;   North Dakota;   Ohio;   Oklahoma;   Oregon;   Pennsylvania;   Rhode Island;   South Carolina;   South Dakota;   Tennessee;   Texas;   Utah;   Vermont;   Virginia;   Washington, DC;   Washington;   West Virginia;   Wisconsin;   Wyoming

USA Territories: American Samoa (USA)   Guam (USA)   Puerto Rico (USA)   Virgin Islands (USA)   Northern Mariana Islands (USA)

USA Compact Free Associations: The Federated States of Micronesia (USA)   Marshall Islands (USA)   Republic of Palau (USA)

Canada: Alberta   British Columbia   Manitoba   New Brunswick   Newfoundland and Labrador   Northwest Territories   Nova Scotia   Nunavut   Ontario   Prince Edward Island   Quebec   Saskatchewan   Yukon

Israel

International country outside of the USA, Israel and Canada.